Using the concept of existing experience in treatable intellectual disability (www.tidebc.org), web-based teaching materials were developed and orchestrated with BC Paediatric Society. This project is linked with the Down Syndrome APP project and will frame how and which reminders/notifications should be included in the app and enhance the quality of the app in offering guidance to parents /caregivers of individuals with Down syndrome and assistance to professionals.

Achievements: (1) Created teaching materials based on literature analysis and investigation of (i) standard of care and care models; (ii) phenotypic variability and natural history in adults with Down syndrome and long term outcomes; (iii) impact of sleep problems on cognitive and emotional/behavioral functions; (iv) patient perspectives. (2) Developed case vignettes featuring medical, chronic care and social issues. (3) Includes Real Case demonstrations based on patient videos, caregiver and health care provider interviews. (4) Demonstrates clinical assessment methods. (5) Development of the teaching web-site (link) still under construction

Project Leads: Sylvia Stockler

Co-Leads: Linlea Armstrong, John Jacob & Osman Ipsiroglu (BC Children’s Hospital, Vancouver, BC)

Project Partners: Dr. George Capone, Down Syndrome Program (Kennedy Krieger Institute, Johns Hopkins University, Baltimore, USA; BC Paediatric Society

Research Assistants: Maria Bleier (lead), Nadia Beyzaei

Funding: (1) TLEF - Teaching & Learning Enhancement Funds, University of British Columbia (PI: Dr. Sylvia Stockler); (2) Treatable Intellectual Disability Endeavour/BC Children’s Hospital Foundation: Funding Award for Down syndrome virtual clinic (PI: Dr. Sylvia Stockler); (3) DSRF (in-kind contributions)

Acknowledgements: Mr. Ross Scott for the development of the first version of the web-based teaching tool